Should genomic testing go ahead without parental consent? When results could drastically impact a child’s quality of life, should parents be allowed to decline testing?

Share your views in this 10-minute survey. 

We are seeking the views of English-speaking paediatric or neonatal intensivists (either practising or in training) on the use of rapid genomic sequencing for critically ill infants. Our short survey will ask about two different ethical scenarios surrounding gaining consent for genomic testing and how a genomic test might influence treatment decisions. 

This will be the first study to collect global intensivist perspectives on this topic.

If you are able to participle, please click on the following link:
https://redcap.mcri.edu.au/surveys/?s=HTP88W4FHLA483F8

Please feel free to forward this ad to relevant colleagues!

Any questions, please email: biomedicalethics@mcri.edu.au

Christopher Gyngell
Senior Lecturer, Department of Paediatrics, The University of Melbourne
Team Leader, Biomedical Ethics Research Group, Murdoch Children’s Research Institute

 

Very interesting study. Looking forward to the results and further work on this topic!

I agree

Rapid genomic testing will definitely throw light on the outcome of critically ill kids

 

This is an interesting blog post by prof Keith Barrington 

https://neonatalresearch.org/2022/04/22/does-knowing-the-genetic-abnormality-change-management-and-should-it/