Dear sir,

What are your experiences?

 

Thanks for posting. Where you thinking about the short-term challenges, before discharge from the NICU, or post-discharge challenges.

Handling nutrition to achieve reasonable growth/development will be key. Need of (partial) parenteral nutrition may prevail for some time, and how the remaining gut process oral/enteral feeds can also be a difficulty. Support from a dietitian is usually needed in my experience.

In my local experience these infants and families are usually connected the pediatric gastro department.

Could you please further specify which challenges you  would like to discuss?

IFALD development?

Feeding tolerance and high stoma outputs?

Adequate growth?

Long term outcomes?

Acute surgical complications?

 

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