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99nicu... Your Forum in Neonatology!

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Greetings from the 99nicu HQs

Stefan Johansson

Administrators
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    Sweden

Stefan Johansson last won the day on August 7

Stefan Johansson had the most liked content!

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About Stefan Johansson

  • Rank
    99nicu Team
  • Birthday 06/20/1966

Profile Information

  • First name
    Stefan
  • Last name
    Johansson
  • Gender
    Male
  • Occupation
    consultant neonatologist
  • Affiliation
    Sachs Children's Hospital
  • Location
    Stockholm, Sweden

Recent Profile Visitors

5,945 profile views
  1. Although we have not yet nailed the venue or date for the next 99nicu Meetup (April 2018, in Vienna!), we want to start to crowdsource the program In short, we are searching for topics YOU want to see in the program! No matter how controversial, evidence-based, or big or small, we want your input on topics that help you perform better in the NICU, thereby improving long-term outcomes infants you care for. Also share your dream team of speakers from any corner of the world, who are dedicated, engaging and know how to convey take-home messages! Of note, we are not only looking for superstars. We also want to offer the 99nicu Meetup stage for raising stars. Maybe YOU should come and give a talk
  2. All videos from the 99nicu Meetup is now available!

    At last, all video recordings* of the Meetup lectures are now posted on Youtube! Sorry about the DIY quality Next year we hope to have budget for more professional recordings, but I hope that you will find the lectures good enough. If you value the videos as a good learning experience, please consider to make a small donation here. No matter how small, all donations are mostly welcome to help us fund IT-costs for the 99nicu web site. And here - the 99nicu Meetup playlist! Click on the symbol in the upper left corner to switch/change to another video. *not all videos are included as not the recording failed in a few instances
  3. Life, and Medicine, with a Disability

    @kbarrington Thanks for sharing this great post here (saw it on your blog last week), and great you enlighten everyone about the paywall-thing
  4. Orphanet

    Orphanet is a web portal for rare diseases and orphan drugs. Orphanet was established in France in 1997 at the advent of the internet in order to gather scarce knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases. This initiative became a European endeavour from 2000, supported by grants from the European Commission: Orphanet has gradually grown to a Consortium of 40 countries, within Europe and across the globe. Over the past 20 years, Orphanet has become the reference source of information on rare diseases. As such, Orphanet is committed to meeting new challenges arise from a rapidly evolving political, scientific, and informatics landscape. In particular, it is crucial to help all audiences access quality information amongst the plethora of information available online, to provide the means to identify rare disease patients and to contribute to generating knowledge by producing massive, computable, re-usable scientific data.
  5. Science Showcase

    I subscribe to the small Youtube channel Science Showcase curated by Andrew Maynard, a very enthusiastic researcher! Science Showcase collect video clips with scientific content aimed for a broader (public) audience. There is a contest going on and the best video will win 2000 USD. Just wanted share two interesting clips that are sort of relevant for neonatal staff. The first video is about epidemiology and its basic concepts. As you know, there are tons of clinical studies in neonatal medicine based on observational data, many of which suffer from major limitations as researchers did not really grasp some basic concepts how to handle their data... In the first video, there is one mistake though - the illustration of confounding is not entirely correct, instead the video illustrates mediation which is different thing. Small mistake though, as the error in the video is rather that the arrow is flipped 180 degrees. See and find out what I mean The second video is about Big Data, a coming major thing in neonatal research as we get access and collect more and more data. The video is about genetic data, but the same principal idea ("so much data you don't know how to handle it") applies to health register data, and the richness of data that could be tanked down from from our monitors, ventilators etc. Enjoy!
  6. This paper was recently published in J of Pediatr, read it Thanks to @EBNEO that promoted it in this tweet. The headline and study question are both great, but I am sceptical to the design: SGA infant with brain sparing was (as I See it from my vacation balcony in Greece ) compared with a small group of term AGA infants. (96 + 32 infants) Not surprisingly, this small study found mostly no differences. but as you know - abscense of evidence is not evidence of abscense. would have been better if SGA infants with brain sparing had been compared with SGA infants without it (or study whether degree of SGA would be associated with outcomes). Not supernew (has been done before if I recall it correctly) but still relevant to replicate Below - URL to the paper in J of Pediatr www.jpeds.com/article/S0022-3476(17)30781-3/
  7. Holiday greeting from Fårö 2017

    From the album Trips

    -
  8. Trips

  9. Holiday greeting from Fårö 2017

    From the album Trips

    A crazyly good creperie
  10. Holiday greeting from Fårö 2017

    From the album Trips

  11. Holiday greeting from Fårö 2017

    From the album Trips

  12. There is a new case posted in the Virtual NICU - an infant with nCPAP got a nasal burn injury. The posting member wants to hear if other member has experience from similar rare events. Log in and you will be able to read the history and view photos here: https://99nicu.org/forums/topic/2029-unique-case-with-catastrophic-end-1st-reported/
  13. During the last few weeks, we have had some very interesting discussions in the Virtual NICU, about an infant with 22q11 syndrome, about one infant with osteogenesis imperfecta, and one infant with a yet undiagnosed congenital syndrome. The Virtual NICU can only be accessed when you are logged in, i.e. you can only read and post in that section if you have logged in with your username and password. Further, unless you are logged in, the content in the Virtual NICU won't be displayed in the Activity Feed on our landing page. I add two screen shots below, as an illustration what the feed looks like as not logged in and as logged in. If you don't want to log in every time, just tick "Remember me" when you log in, and you will be automatically logged in every time you visit 99nicu
  14. Meetup Lectures on Youtube

    Almost all lectures on the 99nicu Meetup were videorecorded and will be made available on Youtube. Over the summer, we will be adding lectures on the Meetup page (https://99nicu.org/meetup2017/). Right now you can see David Sweet lecturing about RDS management and Rebeccah Slater lecturing about pain in preterm infants, but more will come...
  15. First of all, my sincere thanks to everyone involved in the 99nicu Meetup, delegates for attending, speakers for giving great lectures, and partners for support! Despite a lower number of delegates than we had planned for (we did not pick the perfect dates for the Meetup...), I think we managed very well. We needed to downsize and slimline a lot, including changing the venue. But, content was king thanks to great lectures, and all interactions and networking. Given the great feedback we had from delegates, we are committed to continue with this IRL forum for the 99nicu members. Stay tuned for information about the next Meetup, preliminary scheduled for April 2018 in Vienna. Almost all lectures were videorecorded and they will be added over the summer on the Meetup page here: https://99nicu.org/meetup2017/ Right now you can see David Sweet lecturing about RDS management and Rebeccah Slater lecturing about pain in preterm infants. The only downside was the financial results, not yet definite but estimated to be a loss of ~5000 USD. Despite "the pain to open the purse" and our original plan to raise funds for IT work for this web site, I believe we shall regard this first meeting as an investment for future Meetups. We will also be trying to crowd-fund to cover some of the deficit. Those who value the videos as a learning experience are able to make a small donation. That was all my reflections for now. Until we meet in Vienna, see you here on 99nicu.org
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