99nicu.org

Should genomic testing go ahead without parental consent? When results could drastically impact a child’s quality of life, should parents be allowed to decline testing?

Share your views in this 10-minute survey. 

We are seeking the views of English-speaking paediatric or neonatal intensivists (either practising or in training) on the use of rapid genomic sequencing for critically ill infants. Our short survey will ask about two different ethical scenarios surrounding gaining consent for genomic testing and how a genomic test might influence treatment decisions. 

This will be the first study to collect global intensivist perspectives on this topic.

If you are able to participle, please click on the following link:
https://redcap.mcri.edu.au/surveys/?s=HTP88W4FHLA483F8

Please feel free to forward this ad to relevant colleagues!

Any questions, please email: biomedicalethics@mcri.edu.au

Christopher Gyngell
Senior Lecturer, Department of Paediatrics, The University of Melbourne
Team Leader, Biomedical Ethics Research Group, Murdoch Children’s Research Institute

Fr Tw!

From Tw!

Dr Vito Di Guardo posted this on our LinkedIn page:

Quote

Yes, Orally 7,5 mg/kg every 12h IV 5 mg/kg every 12h

https://www.linkedin.com/feed/update/urn:li:activity:6722558004169912320?commentUrn=urn%3Ali%3Acomment%3A(activity%3A6722558004169912320%2C6722581427495428096)

From Tw!

We got this question on our FB page, please share your advice:

Quote

 

Would someone have a template for a birthing plan about DCC for a term and healthy (or non complications) birth? I watched the webinar recently (uploaded youtube May 15th 2020). There was a lot of information, with a lot of variables, and some confusion on my end.

Time was 1-10 minutes. No milking. If baby breathes on their own. I was just wondering if someone has a step by step in detail. I'm new to this information and spoke with our obgyn at our appointment today (mommas 35wks), and she said they generally go a minute, but also milk.

 

We welcome a Lifecast Body Simulation as a Supporting Partner! Many thanks for becoming a Partner and for supporting our work!

Lifecast Body Simulation creates ‘Hi Sensory Fidelity’ with Lifecast Pre-Term and Term baby manikins designed and manufactured at the world famous Elstree Film Studios in London, UK. Based on scans of real babies, lifelike features include cannulateable umbilical cords, visible veins, IO injections, ALS compatible airways and hand punched hair. 

Lifecast Pre-Term and Term babies encourage more natural handling, bringing a new level of realism to medical training and demonstrate our belief in building simulation training tools that create emotional attachment and engagement. 

Visit their web site on www.lifecastbodysim.com

We are posting this on behalf of the company Orphanix, partner of the 99nicu Meetup in Copenhagen 2019.

- - - - - - - - - - - - - - - - - - - - 

Would you like to participate in a small study about intravenous vitamin A?

Vitamin A (retinol) has shown to be effective in preventing BPD according to the recent Cochrane Metaanalysis (Darlow 2016). That is why it is practically in all major guidelines. Unfortunately, there is no vitamin A product available that is suitable for preterm infants.

The company Orphanix has developed a vitamin A formulation specifically for preterm infants. This innovative pharmaceutical can be used also intravenously and contains safe excipients only.

For EMA authorization, Orphanix will be carrying out a small clinical study, including 12 preterm infants born at 24-31 weeks.

Would you like to participate in such a study?

Orphanix would like to get in touch with NICUs already using vitamin A intramuscularly or NICUs that would like to participate in this study without prior vitamin A experience.

For more information, please share your address details directly with Philipp Novak, dr.no@orphanix.com / +43-6769663799

Contact Details
Dr.Philipp Novak, Managing Director
dr.no@orphanix.com
+43-6769663799

orphanix GmbH
Tabakfabrik - Strada del Start-Up 
Peter-Behrens-Platz 10 
4020 Linz, Austria
www.orphanix.com

From Tw!

From Twitter:

Comment from the shared post on FB (https://www.facebook.com/99nicu/posts/2672681999434876) 

Quote

Pigtail drains are so much easier to use.

What do you think about different types of drains?

More fr Tw:

Fr Tw!

From Twitter!

Some input from Twitter:

On Twitter:

EVIDENCE & EXCELLENCE IN PERINATAL CARE

Book now to join the BAPM / EBNEO conference, 11-13 Sept 2019, in Newcastle (UK)

Hear from the leaders in the field on the latest best practice

• Be the first to hear ground breaking research
• Contribute to the development of policy for quality perinatal care
• Present your own work throughfree papers and posters
• Network with colleagues fromacross the British Isles and beyond
• Benefit from excellent CPD opportunities

Visit the web site https://www.bapm.org/bapm2019 for more info and to register!

BAPM EBNEO Conference 2019 Flyer.pdf