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99nicu.org 99nicu.org

HIE-specific resources for families


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Hope for HIE is the premiere global organization dedicated to improving the quality of life for children and families impacted by HIE. Over the last several years, we've grown our comprehensive peer-to-peer support network to serve over 6,000 families worldwide across all ages, stages, outcomes and locations.

We have been aggressively building out new educational content in collaboration with our Medical Advisory Board, and also offer printable materials, newly diagnosed family support boxes for point of diagnosis that you can request at any time, and more that can be accessed through our website and social media channels.

We are always eager to collaborate for improved care, communication and connection for our families. We know that the earlier they are given information, the more empowered they are to help their children reach their fullest potential. While disability continues to be pervasive, our families typically just need the resources to help them achieve their best lives with their children who, no matter what level of disability, bring immense value and love to the world.

We look forward to partnering with you!

Questions? Want to connect? Email me at betsy@hopeforhie.org


Betsy Pilon, Executive Director

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