The Honesty Sessions: a new webinar series in collaboration with Adult Preemie Advocacy Network!

Exciting news!

To mark World Prematurity Day, the 99nicu has partnered with the Adult Preemie Advocacy Network to power a series of webinars throughout November, to raise awareness of the varied long term impacts outside of the NICU into adulthood. The series will include those with lived experience alongside insights from healthcare professionals & researchers.

REGISTER HERE >>> https://zoom.us/webinar/register/WN_jeMZkF-5Tj2CucyEQOgmeA <<<

Adults Born Preterm: The Honesty Sessions is a five-part webinar series that explores the lifelong impact of preterm birth through candid conversations with experts, advocates, and individuals born preterm. Covering topics from advocacy and communication between clinicians and patients to preterm lung health and personal insights, this series provides a platform for sharing experiences and advancing knowledge on preterm birth beyond the neonatal period.

Adults Born Preterm: The Honesty Sessions

Webinar 1: We just catch up, right? Adults Born Preterm & The Path To Advocacy 

Live: 2 November 2024 15:00 GMT

Webinar 2: It’s Time to Talk... Preterm Birth is for Life (prerecorded)

Recording release date:  6 November 2024 12:00 GMT

Webinar 3: Preterm Birth History Matters – To Both of Us: How to Foster Communication Between Clinicians and Patients

Live: 11 November 2024 16:00 GMT

Webinar 4: Introducing the BPD Collaborative & Insights into Preterm Lung Health in Later Life

Live: 18 November 2024 19:00 GMT

Webinar 5: The PERIScope Project – An Insight Into What Matters for Adults Born Preterm

Live: 27 November 2024 10:00 GMT

REGISTER HERE >>> https://zoom.us/webinar/register/WN_jeMZkF-5Tj2CucyEQOgmeA <<<

Speakers:

• Lauren Ingledow holds a BSc (Hons) in Applied Animal Studies and has worked as a qualified Canine Hydrotherapist. Born at 26 weeks due to pre-eclampsia, Lauren co-founded the Adult Preemie Advocacy Network in 2021 to raise awareness and provide peer support for adults born prematurely.
• Juliette Lee is a qualified paediatric nurse with a BSc (Hons) in Child Nursing. Born at 28 weeks due to Twin-to-Twin Transfusion Syndrome, Juliette co-founded the Adult Preemie Advocacy Network to advocate for greater understanding of the lifelong effects of premature birth.
• Mandy C. Daly is the founder of the Irish Neonatal Health Alliance and a mentor to PhD students, specializing in advocacy, education, and neonatal health research. She contributes to advisory boards, guideline development, and over 70 research studies, shaping European Standards of Care for Newborn Health.
• Michelle M. Kelly is an Associate Professor at Villanova University and a pediatric nurse practitioner, focusing on neurodevelopmental outcomes and lifelong health risks of those born preterm. She publishes and presents internationally on preterm birth outcomes and nurse practitioner leadership.
• Steve Abman is Professor of Pediatrics and Director of the Pediatric Heart Lung Center at the University of Colorado, with expertise in neonatal lung injury and pulmonary hypertension. He co-founded the BPD Collaborative and recently served as President of the American Pediatric Society.
• Sharon McGrath-Morrow is a pediatric pulmonologist at the Children’s Hospital of Philadelphia, researching neonatal lung injuries and their long-term effects. Her clinical focus is on developmental lung diseases in preterm infants and the role of environmental factors in respiratory outcomes.
• Joseph Collaco is a professor of pediatrics at Johns Hopkins University, studying the epidemiology of pediatric respiratory diseases like cystic fibrosis and bronchopulmonary dysplasia. His research emphasizes the impact of environmental factors such as secondhand smoke and e-cigarette emissions.
• Rachel Collum is a strong advocate for Family-Integrated Care in neonatal units, working to support families of preterm infants in the UK. She chairs the Northern Neonatal Network Parent Advisory Group and leads advocacy efforts with BAPM, focusing on the lifelong effects of prematurity.