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The Weight of Small Things

A blog by Mariana Oliveira in Community

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About this blog

The Weight of Small Things: reflections from the NICU and beyond—on fragility, resilience, and what caring for the smallest lives teaches about the biggest questions.

Entries in this blog

Palliative Care

The Care That Dares Not Speak Its Name

This week I cared for two pediatric patients, both under two years old, each diagnosed with a severe inborn error of metabolism carrying a limited, though uncertain, prognosis. For both families, I recommended a consultation with the pediatric palliative care team. In each case, the parents visibly recoiled at the word “palliative” — a reaction that underscored how far we still have to go in improving care for children with complex chronic conditions. A brief note on my own background may help c

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