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dee2

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Everything posted by dee2

  1. Jouberts Syndrome

    dee2 replied to a post in a topic in Neurological Disorders
    Hi Just noticed this post I am a student nurse but was previously special needs teacher I thought a little girl with jouberts while there. Im not sure if this is the kind of info your looking for and i don't really have the medical vocabulary to describe her condition but I can tell you that she was a very bright little girl and despite all her medical problems a very happy little girl. She is now in her teens and is awaiting a kidney transplant - there have been many occasions throughout her life when we all thought that she was going to go but she is incredibly resilient and has always bounced back. I hope that this info has some use for you. Dee xxx

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