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Preterm Epidemiology and Ethics

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Parent Session Guest Lecture
Parental Experiences at Limits of Viability 

I would like to invite you all to the session on Thursday the 6th of May from 1400-1530 BST. 
The session starts with Professor Dominic Wilkinson talking about how we communicate with parents in different situations and cultures and how this changes from prior to birth to after birth. 
 This is followed by a parent session where we will have parents from 3 different countries speaking to us about their experiences in 3 areas
How we communicate and what they hear
Prognostication and Difficult Conversations

To join on the day

Alok Sharma is inviting you to a scheduled Zoom meeting.

Topic: EFCNI Parent Session DW SM
Time: May 6, 2021 02:00 PM London

Join Zoom Meeting

Meeting ID: 885 8913 2174
Passcode: 989631
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Dear Colleagues,

I hope this email finds you well and in the best of health and good spirits. I would like to thank you for participating in our preterm epidemiology and ethics module. We along with the European foundation for the Care of Newborn Infants are organising a parent led session on 'Shared experiences of Parents at Limits of Viability'.
This session is being run on the 06/05/2021 from 1400-1600 British Summer Time with a schedule as follows
1330-1400 Registration and Waiting Room
Time: May 6, 2021 02:00 PM London
Join Zoom Meeting
Meeting ID: 885 8913 2174
Passcode: 989631
1400-1430 Parental role in decision making 'An Ethical Framework'; 'Principles and Pitfalls';Disagreement Professor Dominic Wilkinson
1430-1515 Parent Sessions Chair Silke Mader Chair EFCNI
1. Disagreement between parents and clinicians over the care of the baby L Bonnard Germany
2. Decision – making around specific interventions (stopping intensive care, life-saving care etc) Marni Parnas Canada
3. Antenatal decisions – parental perceptions Mandy Daly Ireland 
1515-1600 Q and A
Meeting Etiquette
All participants will be muted on entry with their camera off
All participants must maintain strict silence during the talks
Parents and health professionals can write their questions in the chat box while the talks are being given. They should mention who they are addressed to using initials as follows
Silke Mader SM
Dominic Wilkinson DW
L Bonnard LB
Marni Parnas MP
Mandy Daly MD
At the end of the parent session a Q and A session will begin in which Silke Mader chair of the session will direct your questions to the speakers.
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