Neurological Disorders

[With Reference to John P Cloherty, Manual of Neonatal Care, Fifth Edition,Pp547,Lippincott W&W]: "For unexplained reasons even refractory seizures in HIE ultimately burn themselves out and cease after approximately 48 hours". WHY DO THEY?

Hi all, our friends have a 5 month old preemie, (who I nursed in our NICU) with Jouberts Syndrome. Her main feature at the moment is the constant apnoeas. Apart from that, she was a preemie, is behind in milestones etc. Just wondering if anyone has come across Jouberts??? Maybe older kiddos with the syndrome? How do they fare, whats their prognosis? Would be eternally grateful for some feedback, as we are so involved with this family and their beautiful baby!

I found this article very interesting Williams H. A unifying hypothesis for hydrocephalus, Chiari malformation, syringomyelia, anencephaly and spina bifida. Cerebrospinal Fluid Res. 2008 Apr 11;5:7. LINK

HaLLO I,m looking for every information about children with 46, XX der (1) genotype. Girl with such genotype was born today in our hospital (35 Hbd). For now, she needs nCPAP, she has a cardiac murmur, "genetic face", internal hydrocephalia. NeXt investigations will be done tommorow. But do You know something about that? pozdrawiam p.s I'm sorry but I didn't find wright "section " for this post.

Got a mail from one of our members about a nice web site; a short introduction about neonatal brain ultrasound: http://www.radiologyassistant.nl/en/440c93be7456f The link is also added to our link collection found on our portal page.

what about the parameter for diagnosis asphyxia in the newborn, the arterial blood gases mean as an important score

I have a VLBW baby with grade IV IVH. He has siezuers inspite of have high doses of Phenobarb, Phenytoin, Midazolam infusuion and also on Fentanyl. If anybody can help on this to how to control siezures in this baby. Thanks

i would like to know about the methods used for neurological assessment of neonates and 1. age at assessment 2. is it done for all births or nicu graduates 3.follow up of such studies done

We are planning to explore current health in 6-8 year old children born before 32 gestational weeks. Does anyone have experience from a validated questionnaire for parental assessment of their child's general health (including hearing, vision, gross/fine motor function)?