Ethical & Legal Aspects

Friends, I am glad to share that an article of mine about racial disparities, titled 'I Can't Breathe' was just published. Here is the link to the full text of the article (the full text is not available if you go through the journal website). Please share widely - I hope it stimulates action by readers to reduce racial disparities in care and outcomes in the field of perinatal and neonatal care. https://rdcu.be/b6cgM

When do you declare death when a baby dies during transfer and do you continue ventilator support?

Dear Colleagues, I am attaching a link to the website for the European Neonatal Ethics Conference here. We now have the final programme There are still a few places left and you can register on https://www.eventbee.com/v/neonatalethicsconference#/tickets 250 registrations from 44 countries 20 International Speakers 12 Workshops #ENEC2019 Debates Round Tables 50 Abstracts Every Continent ENEC 2019 Final Programme.pdf

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4437279/pdf/1657-9534-cm-46-01-00001.pdf https://www.commissiononassisteddying.co.uk/dysthanasia/

This is a Spanish paper done in Mexico. A transversal research based in an electronic poll sent to Neonatologists and Pediatricians who work in NICU's in the country. We asked them if they were familiar to definitions about orthotanasia, euthanasia, limitation for the therapeutic effort and dysthanasia and which were their usual decisions with babies in end-of-life situations, their relations with families of this babies and then in the discussion we wrote about the changing in the way to manage this stage in terms of adequation instead of limitation in the therapeutic effort. RN etapa terminal - que decide el especialista_2019.pdf

Newborns in crisis: An outline of neonatal ethical dilemmas in humanitarian medicine. https://onlinelibrary.wiley.com/doi/full/10.1111/dewb.12214 Courtesy: https://www.facebook.com/tetiana.konchakovska

This is more a subject in the adult world, but anecdotally it is being done all over medicine... In any case, a good read! http://nautil.us/issue/51/limits/getting-googled-by-your-doctor

Dear Colleagues We are organising the next Neonatal Ethics and Difficult Situations Course 2017 in Southampton. There are a host of excellent topics which include 1. Disagreement between teams -Achieving Consensus 2. Disagreement with Parents-When consensus is not possible? 3. Parental decision making in End of Life Care 4. The Law and End of Life Care: Land Mark Decisions Influencing Management 5. Simulated scenarios with professional actors 6. Neonatal death and Surrogacy 7. Ethical Cases A programme is attached. For more information go to http://www.wonepedu.com/Products.html To register go to …

I guess we're all familiar with situations when we withdraw intensive care for infants for which further care is considered futile. In our units all such decisions are taken in consensus with the neo-staff team and the parents. Although it is rather obvious when intensive care becomes futile, the actual process of decision-making may vary from patient to patient. I would be interested to hear about how you make end-of-life decisions. Have you formalized decision-making? How are the parents involved in this process?