Everything posted by Stefan Johansson
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EBNEO Commentary: Mild Hypoxic–Ischemic Encephalopathy (HIE): Timing and Pattern of MRI Brain Injury
@Mohan I looked into the original publication and it seems to be the Sarnat classification. PubMedMild hypoxic-ischemic encephalopathy (HIE): timing and pa...Almost two-thirds of infants with mild HIE have evidence of brain injury on MRI obtained in the early neonatal period. Subacute brain injury was seen in 37% of infants with mild HIE. Neuroprotective t
- Visual stimulation
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the NICUVERSE - the solution to collapsed neonatal social media feeds?
There’s much to say about Mastodon, and how it is part of a large group of online plattforms / technologies that are connected together, i.e. federated. Here are two short videos about the principals, and see you in the NICUVERSE. Click here to join!
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the NICUVERSE - the solution to collapsed neonatal social media feeds?
I spent a few wonderful days at jENS 2025. While I had great days at this large neonatology conference, I also checked in into the various social media channels, to find out about missed out things. And realised… the neonatal social media is pretty dead ☹️ In the beginning, we had a pretty basic Internet. It offered the opportunity to search for information unilaterally and connecting people over electronic mail. Later came the embryo of the social web, taking the communication beyond emails. The first multi-lateral gatherings happened on so-called Bulletin Boards, often geeky/niched online spaces where like-minded people found freedom and space to “share and care”, as the saying went back then. The 99nicu Discussion Forum was started in 2006 with such an intention, to build a dedicated online community for NICU staff. The social web, as we know it today, was/is built on scale. I believe the initiatives that developed into the large global platforms had sound intentions, but the magnitude of fast growth required business models and venture capital to sustain. As we all know, there is no such thing as a free lunch. Through massive user bases and algorithms, the typical social media feed selectively promotes content aligning with your own posts. In the early days of Twitter, this worked wonderfully well. I was an early Twitter user and truly enjoyed an engaging and active feed. Back then, Twitter was my primary space for finding and discussing new research publications. However, when the open athmosphere got lost, I decided to log out for good. Large social media platforms will, sooner or later, need to capitalise on you, using your data/content for promotion of advertising content. Furthermore, the social web offers anonymity and automation, enabling less nice accounts to ruin your good feeling about your freedom of speech. “Enshittification”… Coming back to jENS and social media... There are a larger set of social webs now. In addition to “the old” X, Facebook, and LinkedIn, we now have Threads, BlueSky, and Instagram. I checked in myself on all mentioned platforms, browsing the conference hash tags #jENScongress and #jENS2025. The results were indeed disappointing. With the exception of companies advertising their presence, very few posts popped up with professional reflections, questions, and comments about sessions and workshops. Back in the days, it was possible to follow news and views shared as conference "live-feeds" on Twitter, as if almost being there in person. The social media coverage of jENS was nothing but a disappointment. Why this? This variety of social webs has led to fragmentation. Today, there is no natural single space for online instant sharing/discussion. People are spread out, there is no critical mass of niched content / people. What now? As a believer of independent initiatives driven by Greater Good Goals beyond business models, I think there is indeed room for our older and slower 99nicu Discussion Forums. But I would love to have an instant feed like Twitter with focused neonatology content, like my old Twitter feed. A large number of NICU staff has joined BlueSky, but despite my attempt to curate a focused feed, it gets cluttered by pets, politics, and all problems in today’s complicated world. I have nothing against pets, politics, or world problems (the other way around!), but I prefer to get such content through other channels (like regular news media). Some time ago, 99nicu opened “the NICUVERSE”, i.e an own Mastodon server. Mastodon is a self-hosted social media platform that gives full control to you as a user (and to us hosting it). There is a slightly higher threshold to get into how it all works. And, the technical platform is also a work in progress (being open source). But we are all smart people and learn by doing! There are several principal advantages with Mastodon: there are no adverts, no one sells your data, you control your integrity and privacy. I do believe Mastodon to be the platform for a community feed with uncluttered neonatal care content. If you are curious to try this out, register for the NICUVERSE here! I will do my best to contribute with content 😀
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Green breast milk - rare side effect of maternal propofol
Breastfeeding mothers having propofol sedation at surgery, may have green discoloration of the breast milk, I just read a short clinical pharma column in the Swedish Medical Journal. I found this longer case report from Canada about this, it seems propofol metabolites can discolour biological fluids other than urine. The authors advice no breast feeding until the color has normalised. Rare thing but still interesting to know and be aware of! https://pmc.ncbi.nlm.nih.gov/articles/PMC6306180/
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CEPAS 2026
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From Neonates to Adolescents: Uniting Paediatric ProfessionalsWelcome to CEPAS 2026, where all paediatric subspecialties, spanning from neonatal care to adolescent medicine, come together to advance child health through cutting-edge research, education, and collaboration. For over 15 years, the European Academy of Paediatrics (EAP) and the European Society for Paediatric Research (ESPR) have been leading the way in paediatric research, education, and collaboration. We are proud to announce the next step in this partnership: CEPAS – the evolution of the European Academy of Paediatric Societies Congress. Join CEPAS 2026, 28-31 Oct 2026, in Lyon/FR. Subscribe to updates here: https://www.cepas.org/subscribe-to-the-newsletter -
Help Select the 2024 EBNEO Impact Article of the Year!
Stefan Johansson replied to Stefan Johansson's topic in EBNEO Commentaries and Articles of the MonthHere is the winner 😀, the VentFirst study, I paste the graphic abstract below. https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2818953
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Our Colleague Vicky Payne Recognized by the Neonatal Nurses Association in the UK
@Vicky Payne so well deserved 🎉🎉🎉!
- Antibiotic stewardship in the NICU - what do you do in clinical practise?
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Last night shift
Thanks @Mariana Oliveira for kind words, and yes, I shall find my way. I think, a more street-smart one 🙂
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Antibiotic stewardship in the NICU - what do you do in clinical practise?
Yes, we do have a low use of antibiotics in Sweden. We did some informal looks into the Kaiser Permanent Sepsis Calculator with hypothetical cases, whether our clinical strategy would differ from the recommendation from the Calculator. It seemed that our current approach was still more restrictive compared to the Calculator, so, we have some secret sauce when it comes to anitbiotics use. There are two recent publications about antibiotics use in Sweden, giving some raw numbers on the proportion of infants given antibiotics (roughly 2% of all NICU admissions): https://fn.bmj.com/content/early/2025/07/18/archdischild-2025-328944 https://pubmed.ncbi.nlm.nih.gov/38517437/ But even with this small rate, there are substantial variations between hospitals, without different sepsis risks, so it seems possible to improve the use even further.
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Last night shift
I’ve done it, the last night shift. What in many ways defines us, devoted to neonatal care, is no longer part of my working life. One of my gifts in life has been endurance and grit, allowing a good amount of workload. It has enabled my long journey from the countryside where I grew up to an intellectually affluent position with many hats: one clinical, one academic, one for greater-good projects (like 99nicu!), and one as a startup entrepreneur. But with time and age usually come limitations, even for me. Approaching my 60s, and accepting that our family’s cardiovascular phenotype is also my trajectory, I decided to follow the advice to stop working shifts. There’s no drama or anything like that (no need to send flowers!), but I want to stay in good shape until the finishing line. Still, quitting night shifts is a big step for me, one I’ve been hesitant about. While there are many upsides, including a sense of relief, I also feel a certain fear of missing out. I think many of you reading this can relate to how shift work becomes part of your DNA when you dedicate your professional life to neonatal care. Babies are born seven days a week, and they don’t care if delivery happens at 2 a.m. on Midsummer’s Eve.* As NICU staff, we know this. Our setup is planned accordingly, and most of us would admit that we actually like this lifestyle, being able and willing to open our large toolbox of small things, at any time. During my many shifts over the years, I’ve been privileged to meet countless families and their newborns under challenging circumstances. In most (though unfortunately not all) cases, these situations have brought relief and reward, especially when later meeting families and NICU graduates at our follow-up clinics. So, what now? Honestly, I’m not entirely sure. My daytime clinical role won’t change much, but the bigger shift is in my overall “business model” for work. In Sweden, on-duty hours can be compensated with time off instead of pay. For example, if you work a weekend, you can get a full week off with salary instead of “grabbing the money.” For me, time has its own precious value, and our model of compensating shift work with time have allowed me to engage in many fulfilling but unfunded projects still connected to neonatal care. Such as research, 99nicu and EBNEO, and starting Neobiomics from scratch. Now, without the opportunity to “earn time” from night shifts, I’ll need to rethink how to fit my life into a tighter schedule. That’s not entirely a bad thing, but it will require new, creative ways to keep working for the bigger picture. ⸻ *Maybe this isn’t the best example — at 2 a.m. on Midsummer’s Eve in Sweden, many Swedes are still awake, enjoying the early morning sun. But you get my point.
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Help Select the 2024 EBNEO Impact Article of the Year!
Help Select the 2024 EBNEO Impact Article of the Year!The EBNEO Impact Article of the Year (IAOTY) celebrates research that shapes neonatal practice and sparks global discussion. From the Impact Article of the Month (IAOTM), EBNEO editors have selected the eight most impactful articles of 2024, and now it’s the community’s turn to decide which study stands out. The public vote is open for five days, and the two articles with the highest votes will advance to the final round, where the neonatal community will select the ultimate IAOTY winner. Only one vote per participant is allowed; multiple votes will be monitored and removed. This award reflects not only scientific excellence but also the voices and priorities of clinicians worldwide, true to EBNEO’s mission of making evidence-based neonatology both accessible and impactful. Which 2024 publication will have the most impact on neonatal care? Click here to vote or visit https://ebneo.org/impact
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Watch Preemie voices | Listen to Neonatology Now
we wanted to promote two neonatology media projects. First of all, the Preemie voices videos, meeting some of the preemie participants who wrote the inspiring letters in “Preemie Voices” book by Dr Saroj Saigal. Both videos, from 2014 and 2024, are added to the Links Directory but also embedded directly below. Our second recommendation is to follow Neonatology Now, a podcast hosted by European School of Neonatology. The most recent episode is a very interesting interview with Prof Barbara Schmidt.
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Preemie voices 2024
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Ten years after we heard from several of the preemies featured in the Preemie Voices book, we catch up with the same participants to hear about how their lives have changed into their forties. From the loss of parents and marriages to career triumphs and the birth of children, the same group from 2014 bravely and candidly share their lives with us, giving viewers a glimpse into the lives of individuals born in the late 1970s as premature infants. -
Preemie Voices 2014
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In this video, we meet some of the preemie participants who wrote the inspiring letters in “Preemie Voices” book. The video provides a visual insight into the candid stories of young adults, both with and without disabilities. It is both powerful and educational and should be seen by former preemies, their parents, and health professionals. -
Neonatology Now - the ESN Podcast
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Neonatology Now: Expert Discussions with the ESNGet ready to dive into the world of perinatal medicine and join our host Prof Mario Rüdiger as he interviews world-renowned experts in the field each month. -
GLOBAL NEONATAL JOURNAL CLUB! 👶
Here's the link to the recording of the Journal Club, password is GNJC
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Definition of distention
Tricky question, I agree with you @gmavrogeorgos , abdominals symtoms can be many so one needs to think about the whole picture where distension (however defined) is only one part of the puzzle. We used the measure abdominal circumference back in the days, super tricky and rarely gave any relevant numbers IMHO
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Acellular pertussis
Preterm infants getting unstable "than expected" at their vaccination at 2 months (the extra dose we give in the NICU), we sometimes give the first regular vaccination (3 months of chronological age) at our hospital policlinc, and make the family wait 2-3 hours after the vaccination. I have not experienced that any infants has become unstable, but we offer this as an extra precaution, and as a bonus, we do not loose the "credibility" of vaccinations as such. The second regular dose, at 5 months chronological age, is then given at the regular child care center where all other children get the vaccinations. In my experience, this works well for everyone, the infant, the parents and for us :)
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GLOBAL NEONATAL JOURNAL CLUB! 👶
Mercy Perinatal is thrilled to announce another amazing international venture for our neonatologists, paediatricians, allied health clinicians, neonatal nurses, midwives and even keen obstetricians! LIVE via Zoom, we will have an international panel discussing landmark neonatal papers and whether or not they should change your clinical practice… even immediately! Hosted by Mercy Perinatal’s own Prof. Brett Manley and Dr. Shiraz Badurdeen, and the inimitable Prof. Ju-Lee Oei from Mater Brisbane, the sessions will reflect the successful format of the established Global Obstetrics Journal Club – a deep explanation of the papers; insights directly from the key investigators of the studies; and then erudite conversation with a superstar, global panel including: world-renowned physiologist Prof. Graeme Polglase and the incredible Dr. Kong Juin Yee from Singapore. Plus, live Q&A with YOU, our online audience. We have you hooked, right? Registration is free, and always will be, but you need to book your place today at: https://mercyhealthau.zoom.us/webinar/register/WN_5I49-2WYSHm2klkp-7BCUw Find the two papers discussed here: https://www.thelancet.com/journals/lanepe/article/PIIS2666-7762(24)00315-6/fulltext https://jamanetwork.com/journals/jamapediatrics/article-abstract/2836681 Final Announcement GNJC Base Social Media - August .mp4
- Safety and Use of Probiotics in Neonatal Care – Insights from Imperial College & Lancashire Teaching Hospitals in UK
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Acellular pertussis
We rel often see some minor instability and irritability when we give the first (extra-dose) vaccin at 2 months in preterm infants. We mostly wait and see until symtoms disappear and sometimes give paracetamol. Although rarely, it happens we need to give HFNC before all is fine again.
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Software for Donor Milk Bank
@NHowold this is why I believe that a community driven project would be a great fit for this type of software, maybe connected to EMBA? Would be happy to be part of such a project :)
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Software for Donor Milk Bank
Thanks @Wigand , looks very interesting and open source too! I think a milk bank solution indeed could be the perfect thing for a community-driven open source software (like my favourites Zotero, Collabora, NextCloud and Mastodon). My German is rudimentary but I understand it correctly that this is a generic biobank software? Did you need to do a lot of adaptions or do you use this more or less out-of-the-box? I am not fully into the new EU regulation about donor breast milk, but does the use of this software comply with those (traceability etc)?