piatkat

99nicu has been definitely a lifechanging journey for me too! I remember registering here as medical student (I also recall asking @Stefan Johansson for permission via email explicitly!!!). At that point I was actively searching for summer observership opportunities*. I had previously done an excellent observership via IFMSA in Sweden and wanted to visit another NICU there, but @Stefan Johansson said his unit is very quiet during the summer and suggested I ask @Francesco Cardona instead. I can confirm that Francesco's unit was NOT quiet during the summer- it turned out to be one of my best learning experiences, and I'm forever grateful! Then I remember it being a bit more quiet for a while, there was an episode of me writing a blog here but nothing regular, until I joined the 99nicu Team. Since then it has been a fun rollercoaster, full of us having insane ideas and Stefan supporting them (with a patience of a saint). Have grown so fond of everybody in the Team and appreciate so much Stefan being always there for us, despite his many many hats. It's so funny how small choices can affect our life (they call it a butterfly effect, don't they?). I don't want to say that 99nicu is the reason why I've been pursuing the neonatology path (this dream has been there even before), but it has definitely had a very supportive role throughout this process. Feeling nostalgic now!!!!!! * In 🇵🇱 it was obligatory for students to complete summer internships, and some of them could be completed abroad.

Neonatal sepsis remains one of the leading causes of death and harm in newborns worldwide, and it disproportionately affects babies in low- and middle-income settings. This week at the PAS 2026 conference, a new global initiative took its first formal step: the Newborn Sepsis Society held its founding meeting. The Society brings together clinicians, researchers, and partner organizations across disciplines and borders, with a shared mission: to improve outcomes for newborns worldwide by advancing the prevention, diagnosis, and treatment of neonatal sepsis. They explicitly prioritize representation from diverse regions, especially where the burden of neonatal sepsis is greatest. 👉 Learn more and join at https://newbornsepsissociety.org/ And as 99nicu, we are excited to see this initiative take off, and keeping our fingers crossed for the growth and good ideas to come. And being the grassroot community we are, we are always open for sepsis discussions- so bring them on! Kat from 99nicu

I’ll dare to tag our expert in Heliox from Poland, @Tomasz Szczapa - maybe you could share some insights here

Hi @Mo7 , recently I gave a talk on apnea focused respiratory monitoring in a conference, and was also surprised about many different approaches! In southern Finland (where I do my research) it's not uncommon to discharge kids home on caffeine. There's a lot of trust towards parents abilities here, so it aligns well with other practices ( eg. kotiloma, I even committed a blog post about it ages ago: https://99nicu.org/blogs/entry/330-kotiloma-means-vacation-at-home/). From what I understand, they later admit caffeine-at-home kids for an overnight observation in the ped unit (SpO2 and HR, Edi monitoring if possible) when they try to wean off the medication, and only then make a final decision. Everybody is quite chill about it (but hey, it's Finland). A small proportion of the kids in my study were on caffeine at home (7/99 included) until median age of 45 weeks PMA (data still unpublished).

Hi all, @Brar post visibility should not be a problem - I can build a dedicated box for neoIPC in the main page (currently, only neoIPC class users see it) or something similar. Let’s see what works best for this content. I was waiting with this task until I had a clearer idea of how you would like to use this space. We have plenty of options here. I have completed a launch post in consultation with @Valentina Canepa , @Stefan Johansson has also already "OK" it, so now we are waiting for your go-ahead. Have good week!

Hi @Brar - welcome! I'm really excited to see NeoIPC members joining, this is the essence of what we want to be doing here at 99nicu- creating spaces for people to share their expertise. Make yourself at home! We're ready to post about this collaboration, but currently still awaiting some materials from your comms team. Good thing about old-fashioned forums- nothing is on fire here. Much more relaxing than Twitter! Have a good week everyone!

How long have you been a member of 99nicu? A year? Five years? Longer than some of your colleagues have been qualified? You might be surprised how far back this community goes. Our 99nicu community has more than 7,000 members from 76 countries. We have been around longer than Facebook has been in Europe, and almost as long as Twitter has existed at all — and despite being "old school", we have persevered. Many predicted that forums would disappear once social media took over. But looking at where the world is going, it feels more and more like we need spaces we can rely on — grassroots, independent, and not subject to the whims of algorithms or platform owners. And honestly? Sometimes we all just need a place that isn't endless doom scrolling. Yes, you can justify it with "but there's educational content there too" — but what is your actual retention of something you had less than three seconds to grasp before the next thing came along? We love meeting you in person — whether at 99nicu meetups or other conferences. It matters, putting faces to usernames. Over the years we have had the chance to meet many of you, whether wearing our academic, clinical, or entrepreneurial hats. Later this year we will meet some of you in France, where we are partnering with the CEPAS conference — and we are genuinely looking forward to what we have planned there. But our global village is much bigger than whoever can make it to a conference. We span continents, and not everyone can travel all the time — after all, somebody has to stay on call. So this year, we want to connect more. As part of our 20th anniversary, we want to organize a few informal online meetings. We want to hear from you — your thoughts on where 99nicu should go, projects we could take on together, and how you can get involved. The first meeting is on May 7th. Details are available in our Community Calendar. Save the date! - Kat from 99nicu

TL;DR: What's Changed and Why You might have noticed while browsing 99nicu recently: reading the full discussions now requires you to be logged in. The first post of any thread remain visible to everyone, like the news updates and feeds. But to read replies and join the conversation, you'll need to log in as a member. We know this adds a step. Here's why we're doing it, and how we're working to make it worthwhile. ________________________________________ Why This Matters?For 20 years, 99nicu is built on professional exchange by NICU staff. When you contribute here, you're part of a community where many members use their real names and affiliations when sharing their clinical experience, knowledge, and personal insights. Our members are willing to be known, and we believe the readers should be, too. ________________________________________ What You Need to KnowRegistration is free and always will be. No fees, no paywalls, no corporate gatekeeping. Just a basic account, that takes one minute to register for, and then you just need to await our manual approval of your account (usually within 24 hours). Homepage News , Blogs and Calendar remain open. Many sections remain open/public for browsing without logging in, including the Homepage, the Latest Research feed. Discussion Forum Topics are visible to everyone. You can see the first post in all Discussions, what colleagues are asking, but to read answers and expert responses, you need to log in. Posting and commenting requires login. Only members can contribute to discussions. We don't verify institutional emails. You can register with any email address. We trust you to be part of this professional community in good faith, but please remember to be thoughtful about what and how you post. Your profile information is visible to other members. Be mindful when sharing patient-related information. While clinical discussions are essential to our community, you must respect patient confidentiality and integrity. Never include information that could potentially identify a patient or family. When discussing specific cases, parental consent is recommended. You are responsible for ensuring your posts comply with your national laws and regulations regarding patient privacy. See our [privacy policy] and [registration terms] for details. Stay logged in with the 99nicu app. Available for iOS and Android, the app keeps you connected without needing to sign in every time. If you visit us with your mobile browser, you'll see a prompt: "View in the app: a better way to browse." It's a simple, browser-style app that lets you keep 99nicu on your phone homescreen — no notifications, no instant messages. Just at the reach of your tap when you want to browse and interact. ________________________________________ The Platform Grows When Your Activity Grows99nicu thrives when you participate! The value of this community isn't just in what you can read — the value is built from people sharing their questions, comments and expertise. Therefore we encourage you to ask questions and share your experiences. Remember: what seems like a "basic, normal thing" to you might be genuinely eye-opening for another clinician somewhere else in the world. We all have unique perspectives shaped by the context where we work, what we've seen, and who we've learned from. So don't hold back! ________________________________________ Help Us Get This RightWe want to make this transition as smooth as possible. So we're asking: What can we do to make logging in easier for you? Is the registration process clear? Do you have any issues recovering your password? Let us know in the comments, or send us a message- we're here for you! See you inside! Kat from the 99nicu Team

Done, you are now the owner @Valentina Canepa . Let me know if you need anything!

Hi @Chiara Minotti , @Valentina Canepa- I'm currently trying to figure out which level of admin privileges is needed for you to edit the Club page freely. It seems Stefan was right about one owner allowed, but the club can have many Leaders (that's your your assigned function now), giving you ability to moderate the content to some extent. You can also invite people as members - I believe it sends them a notification to join the club (but anybody can become this club's member regardless of your invitation). You can add pages (and remove them, so go ahead and experiment- the club has very low visibility right now, so you don't have to worry about other users getting confused). I see the current role doesn't give you access to the club settings (so you are unable to edit the round Club icon, and "Description/About" section)- do you want me to assign one of you as the Owner so you can edit it, or you'd prefer to send the text and the image to me and I will edit it for you? Below a screenshot of settings that you don't have access to right now:

I found this case series from Boston Children's Hospital: Shumer et al. (2014). Severe hypercalcaemia due to subcutaneous fat necrosis: presentation, management and complications. Archives of Disease in Childhood. Fetal and Neonatal Edition, 99(5), F419–F421, https://pmc.ncbi.nlm.nih.gov/articles/PMC4134364/ It's a chart review of 7 infants over 13-year period, so quite rare even for a large center. They report the use of iv hydration, furosemide, glucocorticoids and low-calcium formula for most patients. One patient was treated with calcitonin, and another with pamidronate after conventional therapy failed (reaching normocalcemia within 12 hours from pamidronate). They also mention complications: fever, eosinophilia and persistent nephrocalcinosis (though without renal dysfunction over follow-up period). Does it align with your experiences?