Jelli KA

Dear 99 NICU community I just completed Ethics of AI Course Diploma with the University of Michigan with Prof.H.V. Jagadish This prompt to write a case study as applied to neonates. At the end ( sources ) you'll find the last article on the use of deep learning to predict outcomes In the last decade, many different projects around the globe have attempted to use artificial intelligence to improve outcomess of premmies, estimate age, and predict the possible complications in the NICU stay. Several ethical issues and how the neonatal community is trying to use it for the good. Each premature infant generates a huge amount of data. This is where AI comes in bringing insight, but with an ethical implication beyond data privacy with many ramifications, extending data breaches to threaten health disparities due to population sample usesd to train AI models. Thus, This Health data mining has a huge potential for harm. In past, there have been many attempts by tech companies to monetize this data. In the early 2000 with the advent of genomics legislators tried to protect the user by passing laws such as Gattaca, to prevent discrimination. This was not enough as tech usually is ahead of legislation. Starting with the bad. Here is an example that struck me the most as explained by the “ website. A recent ethical misconduct case illustrated by David Marco is Google’s “project Nightingale”, where they were able to access personal health records to develop their AI. In doing so, violating several ethical principles starting with consent without asking for consent from the patient and without notifying medical professionals.Secondary violations in terms of data privacy and transparency about the objective of the project. The company claimed they respect the HIPAA legislation business clauses. In my opinion, clearly not enough and not acceptable. In addition, breaking Dr. Jagadish's first rule - do not be surprised. When I heard the episode “Harnessing the Power of AI for Better Neonatal Outcomes (ft NeoMIND-AI founders Drs. Barry and McAdams)” I was intrigued but skeptical due to data privacy issues, discrimination and equity ramifications. After listening to the @nicupodcast episode It hits a lot of good points about how tech can bring better care to the NICU, in terms of insights and capabilities augmented for clinicians. Yet it still feels it needs care and consciousness. Here there are data privacy concerns, so we need to take care with parental consent. In addition, Algorithms need to be tweaked to prevent discrimination against minorities. The doctor also explains that data sharing is tricky in terms of ethics. https://podcasts.apple.com/es/podcast/the-incubator/id1566031191?i=1000655297640 To conclude that AI needs to be used with consciousness, transparency, solid data validation and engaging the stakeholders such as parents and clinicians. Sources / Data Ethics: Master Responsible Data Use: https://www.ewsolutions.com/understanding-data-ethics/ The ethics of data mining in healthcare: challenges, frameworks, and future directions - PMC AI can predict preemies’ path, Stanford Medicine-led study shows

Latest article I discovered relating to Japanese care neonatal of the tiniest babies 22-25. Good 🌟 news on the positive outcome. It is worth a 📖. It is an open access article published by Tokyo University researchers in nature September 2024 #FOAM #neonatal #beyondlimits #periviability #neonatalethics https://www.nature.com/articles/s41372-024-02093-0

Great iniciative

Had a chance to attend #TEIBIO - Transference (of knowledge Entrepreneurship ) & Innovation in Biotech . inspirational talk on rare diseases awareness day and topics were bringing hope to paediatrics #nicu: by address solutions to Neonatal Congenital Heart #CHD ❤️and better tolerance heart transplant. - 💡Crazy scienceco-founder Dr. Beatriz Salvador shows us how her team have found a non-invasive treatment for Congenital Diaphragmatic Hernia. They were able the hole in CDH by regulating the immune system. Have had 75%success rate and animal models have shown low toxicity. Currently recognized as an orphan drug EU - finalize animal model trial in a non-rodent model. Hopes to begin clinical trials in 2025 with the esteem collaboration of Dra. Mayte Vallejo, del Instituto para la Investigación Biomédica del Hospital Universitario La Paz de Madrid (IDIPAZ) y paciente advocacy association «La vida con Hernia Diafragmática Congénita» located in Mérida, Spain. Crazy Science & Business S.L. https://crazyscience.es Rafael C. Rocha THYTECH founded a start-up to find a solution to avoid rejection in❤️ transplant in babies. Here the team are using an infant's timus cell to avoid rejection. https://es.linkedin.com/company/thytech Thanks to Carlos Cosculluela Chocarro for the shout-out. @FundacionDRO AsBioMad

Hi Philip, I recently read this article about locally designed designed made in Cameroon by autor Leocadia Bongben. http://nigeriahealthwatch.com/made-in-cameroon-the-locally-fabricated-incubator-designed-to-give-pre-term-babies-a-fighting-chance/?amp=1 In addition,as mentioned by @Gustaf Lernfelt mom-Incubator are designed for such setting. It is feature in an episode @TheIncubatorPodcast Check out #091 - - mOm Incubators: James Roberts. The Incubator Podcast #TechTuesday featurin mOm-Incubator.

Sound great..past meeting having been a treat. Great learning done.😀

hey there here are organizations 🟡Medikamente für die Kleinsten – Deutsche Stiftung Kranke Neugeborene (DSKN) https://www.betterplace.org/de/projects/106791-medikamente-fuer-die-kleinste DSKN organizer of Dresden Symposium with ESPR raising funds for medication and medical supplies fo NICUs in Ukraine 🇺🇦 . Below a few words about the project. “A few years ago I visited some neonatal institutions in Kyiv. On site, we supported our colleagues in improving the care of premature and sick newborns. Now the call for help has reached us that the medical care of the little patients can no longer be guaranteed. Vital medicines for the newborns are urgently needed. The German Foundation for Sick Newborns would like to send the urgently needed medicines to the Ukraine and thus help their colleagues”- Prof. Mario Rüdiger ( translated to English ) 🔵 Tantaka is an organization that collaborates with the Spanish Red Cross and Caritas to fund medicines, food and logistical cost in the UK Vía la Universidad de Navarra.

Dear All, Another organization helping Ukraine is UN World Food Program via their app Share a Meal. They have created a dedicated space - just clink on the link below x more #ShareTheMeal App donate online or download the app on Apple or Android. @piatkat. @Stefan Johansson

That’s great will have to try that.

I haven’t heard about cool cuddle in Spain. I feel it is doable in NICU with care. I see as a way humanize care and allow parents to bond with their babies.

Fantastic put together webinar by neonatal transport Seneo work neonatal transport group. Here are some favorite suggestions. 🔷Ear Muffs 🔷Air mattress 🔷Blanky with mum swell 🔷Fuzzy toy. 🔷Thank the Drivers : Be aware of G force driver have take with sudden break. 🔹Consider 🚑 design allow all to have a better transport experience. From my perspective it was Interesting the neonatal transport Landscape is diverse from the pioneering region Catalonia that NICU/PICU in 1995(🟢) to other regions that don’t. For example, Galicia have a private providers. Madrid & Valencia have dedicated Neonatal teams ( light 🔵). Some team's like the Balear region team have available helicopters/planes. Below is map showing the situation.Regions in 🛑 done by regional Emergency Teams. Benchmarking there work in a effort to improve the quality, provide constructive feedback and find ways to better ways to collaborate. Benchmarking and humanize care are interlinked with each other. They also underlined that need to keep in constant communication between the transport teams and the coordination hub.

Nice feature easy to do.🙂

Hi all, I am relaying a message from one PhD Twitter Xavi Jimenez ( PhD student , Neonatal nurse at VallHebron, Barcelona) he reply to my re-tweet of the survey by saying the following In the Delivery room they don’t use humidified air, they mostly central air conditioning. They use the humidified air in the NICU as an extra during the Summer month. Cheers, Jelli