Vicky Payne

Our 5th and final webinar in our series on The Honesty Sessions in collaboration with the Adult Preemies Advocacy Network is on Wednesday 27th November at 10:00 GMT. This webinar will discuss The PERIScope Project- An Insight into What Matters for Adults Born Preterm with Dr Rachel Collum. Register here and join over 200 participants from across the world to join in the conversation! Rachel had a baby born pre-term (in 2017) and has since been working within the neonatal sector to improve experiences of the neonatal unit for families. She is a huge proponent of the concept of Family-Integrated Care and campaigns to embed this into our UK units, considering families as partners in their babies’ cares and not visitors. Rachel is Chair of the Northern Neonatal Network Parent Advisory Group and is also Family Advocacy and Support Lead for BAPM, as well as working with charities such as the Tiny Lives Trust and Neonatal Nurses Association. Rachel’s research is focused on how we can better understand what prematurity looks like across the lifespan, and she works with a group of adults born pre-term to co produce recommendations to raise awareness of some of the life-long impacts of prematurity that can inform improved practice. Here is a link to the PERIScope Padlet: PERIScope: An exploration of identity in individuals born pre-term. Register here for the final webinar, and we look forward to seeing you online!

Our 4th webinar in The Honesty Sessions series is on Monday 18th November at 19:00 GMT, titled: Introducing the BPD Collaborative & Insights into Preterm Lung Health in Later Life. Introducing the BPD Collaborative & Insights into Preterm Lung Health in Later Life will provide an in-depth look at bronchopulmonary dysplasia (BPD), also known as chronic lung disease, and the long-term impacts of prematurity on lung health. This webinar will feature three guest speakers alongside Lauren Ingledow, co-founder of the Adult Preemies Advocacy Network. Register here and join >190 attendees from all across the globe! Dr. Steven Abman is Professor of Pediatrics and Director of the Pediatric Heart Lung Center (PHLC) at the University of Colorado Denver Anschutz School of Medicine and Children’s Hospital Colorado. Having completed fellowship training in Pediatric Pulmonary and Critical Care Medicine, Dr. Abman has maintained strong translational research and clinical interests in neonatal lung injury, lung vascular development, pulmonary hypertension, chronic lung disease in the newborn (bronchopulmonary dysplasia, BPD), pulmonary hypertension, and related topics. Dr. Abman was one of the co-founders and is Vice-Chair of the international BPD Collaborative. He recently completed his tenure as President of the American Pediatric Society (APS). Dr Sharon McGrath-Morrow, MD is a Pediatric Pulmonologist and physician scientist at the Children’s Hospital of Philadelphia (CHOP). Her research centre's around the effects of neonatal lung injuries and infections on lung immune responses, alveolar growth, and adult pulmonary outcomes. Her clinical research focuses on developmental lung diseases caused by preterm birth and the role of environmental modifiers in influencing long-term respiratory outcomes throughout the lifespan. Dr. J. Michael Collaco is a professor of pediatrics at the Johns Hopkins University School of Medicine. His primary research interest is in the epidemiology of pediatric respiratory diseases, with a focus on environmental risk factors for cystic fibrosis and bronchopulmonary dysplasia as well as a special interest in the effects of second-hand smoke and electronic cigarette emissions. The BPD Collaborative | Improving Babies Bronchopulmonary Dysplasia Register for the webinar series here!

Our next LIVE webinar in the 5-part series on Adults Born Preterm: The Honesty Sessions is on Monday 11th November 16:00 GMT. Register here! Webinar 3: Preterm Birth History Matters – To Both of Us: How to Foster Communication Between Clinicians and Patients focuses on the importance of effective communication between healthcare professionals and those born preterm, highlighting how understanding preterm birth history can enhance patient care and foster stronger clinician-patient relationships. Michelle Kelly, PhD, CRNP, FAANP, FAAN is an Associate Professor at Villanova University’s M. Louise Fitzpatrick College of Nursing and previous Research Fellow at the University of Rhode Island College of Nursing. As a paediatric and neonatal nurse practitioner, Dr Kelly is an advocate for promoting the health of people born preterm throughout the lifespan, particularly related to neurodevelopmental outcomes and long-term health risks. She has published extensively on the topic. She presents nationally and internationally on preterm birth outcomes, nurse practitioner practice and leadership. She is a Fellow in the American Academy of Nursing and the American Association of Nurse Practitioners. Register here! We look forward to seeing you online! Remember, we invite you to actively participate by sharing any questions or topics you'd like our speakers to address during the webinars. Your input will help shape the conversation, so don't hesitate to ask what's on your mind!

We are looking forward to webinar 1 of The Honesty Sessions coming this Saturday 2nd November at 15:00 GMT. Please see our previous post for more information and you can register here for all webinars! Our next webinar is released on Wednesday 6th November at 1pm GMT titled "It's Time to Talk... Preterm Birth is For Life" with Lauren Ingledow and Mandy Daly. It is pre-recorded and will be released on our YouTube channel . Join Lauren and Mandy as they delve into the lasting impact of preterm birth, addressing the challenges and experiences faced by families and individuals born preterm after NICU. Register here for all webinars! Mandy Daly is a parent of a preterm infant, the founder of the collaborative multi-stakeholder, multi-disciplinary platform, The Irish Neonatal Health Alliance (www.inha.ie) and a EUPATI Fellow and Tutor. She specializes in the areas of Advocacy, Education and Research. Her accomplishments in the field include collaborating on several neonatal and paediatric health system reviews and clinical audits, reviewing obstetric, neonatal and bereavement clinical guidelines, developing and delivering curricula and continued education for medical, nursing, allied health professional and patient expert students. She mentors PhD students, serves on the advisory boards of the PPI Ignite Network, the Clinical Research Facility for University College Cork and the National Office Of Clinical Audit. She has served on the NIDCAP Federation International Board since 2012 and has worked as patient collaborator and embedded patient researcher on over 70 national and international research studies including developing several Core Outcome Sets. She is a chair committee member of group that developed the European Standards of Care For Newborn health, a public reviewer for the Irish Health Research Board and the British Medical Journal Open Pediatrics, a member of the National Office of Research Ethics Clinical Trials Committee. She works with the National Clinical Trials Office Stakeholder and Management Committee, the EMA and the Health Products Regulatory Authority of Ireland and has published papers in several peer reviewed journals. We invite you to actively participate by sharing any questions or topics you'd like our speakers to address during the webinars. Your input will help shape the conversation, so don't hesitate to ask what's on your mind! Please do post any questions you may have for Mandy and Lauren in the comments below 👇

That's right, there is less than one week to go until the first in a five-part webinar series, Adults Born Preterm: The Honesty Sessions, launches! This free five-part series explores the lifelong impact of preterm birth through candid conversations with experts, advocates, and individuals born preterm. Covering topics from advocacy and communication between clinicians and patients to preterm lung health and personal insights, this series provides a platform for sharing experiences and advancing knowledge on preterm birth beyond the neonatal period. Webinar 1: We just catch up, right? Adults Born Preterm and the Path to Advocacy When: Saturday 2nd November at 3pm GMT The first webinar in the series, "We just catch up, right? Adults Born Preterm and the Path to Advocacy" will be live on Saturday 2nd November at 3pm GMT. Join Lauren Ingledow and Juliette Lee, co-founders of the Adult Preemie Advocacy Network CIC as they explore their journey as individuals born preterm who have transitioned into advocates for the preemie community. Who are we? Lauren was born in the 1980’s, at 26 weeks gestation and weighing under 1lbs, due to pre-eclampsia. Lauren achieved a BSc (Hons) in Applied Animal Studies and has previously worked as a qualified Canine Hydrotherapist. Juliette was born in the 1990’s, at 28 weeks gestation and weighing under 2lbs, due to Twin-to-twin transfusion syndrome. Sadly, Juliette’s twin Beatrice passed away at age 12. Juliette achieved a BSc (Hons) in Child Nursing and is a qualified as a paediatric nurse. From connection and sharing experiences of life after NICU, the Adult Preemie Advocacy Network was born in 2021.The Networks aims include providing a global network of peer support and advocacy, by combining scientific evidence with lived experiences to promote awareness and understanding of the life-long physical and psychological impact of premature birth. This session will feature personal stories and insights into how their experiences have shaped their roles in advocacy, providing inspiration and guidance for others on a similar path. We invite you to actively participate by sharing any questions or topics you'd like our speakers to address during the webinars. Your input will help shape the conversation, so don't hesitate to ask what's on your mind! How to register? You can register for all of the live webinars via a single link here. There are a total of 4 live webinars, exploring topics such as the relevance of preterm birth history, preterm lung health in later life, and the PERIScope project! More details on each webinar will be released over the coming week so stay tuned! Please note that webinar 2 is pre-recorded and will be released via our 99nicu YouTube page and on the Adult Preemie's Advocacy Network (APAN) website. We look forward to exploring these topics with you all throughout November!

Adults Born Preterm: The Honesty Sessions is a five-part webinar series that explores the lifelong impact of preterm birth through candid conversations with experts, advocates, and individuals born preterm. Covering topics from advocacy and communication between clinicians and patients to preterm lung health and personal insights, this series provides a platform for sharing experiences and advancing knowledge on preterm birth beyond the neonatal period. Webinar 1: We just catch up, right? Adults Born Preterm and the Path to Advocacy The first webinar in the series, "We just catch up, right? Adults Born Preterm and the Path to Advocacy" will be live on Saturday 2nd November at 3pm GMT. Join Lauren and Juliette, co-founds of the Adult Preemie Advocacy Network CIC as they explore their journey as individuals born preterm who have transitioned into advocates for the preemie community. This session will feature personal stories and insights into how their experiences have shaped their roles in advocacy, providing inspiration and guidance for others on a similar path. How to register? You can register for all of the live webinars via a single link here. There are a total of 4 live webinars, exploring topics such as the relevance of preterm birth history, preterm lung health in later life, and the PERIScope project! More details on each webinar will be released over the coming week so stay tuned! Please note that webinar 2 is pre-recorded and will be released via our 99nicu YouTube page and on the Adult Preemie's Advocacy Network (APAN) website. We look forward to exploring these topics with you all throughout November! If you have any questions for the speakers, do post them here and we can include them in the webinar!

Exciting news! To mark World Prematurity Day, the 99nicu has partnered with the Adult Preemie Advocacy Network to power a series of webinars throughout November, to raise awareness of the varied long term impacts outside of the NICU into adulthood. The series will include those with lived experience alongside insights from healthcare professionals & researchers. REGISTER HERE >>> https://zoom.us/webinar/register/WN_jeMZkF-5Tj2CucyEQOgmeA <<< Adults Born Preterm: The Honesty Sessions is a five-part webinar series that explores the lifelong impact of preterm birth through candid conversations with experts, advocates, and individuals born preterm. Covering topics from advocacy and communication between clinicians and patients to preterm lung health and personal insights, this series provides a platform for sharing experiences and advancing knowledge on preterm birth beyond the neonatal period. Adults Born Preterm: The Honesty Sessions Webinar 1: We just catch up, right? Adults Born Preterm & The Path To Advocacy Live: 2 November 2024 15:00 GMT Webinar 2: It’s Time to Talk... Preterm Birth is for Life (prerecorded) Recording release date: 6 November 2024 12:00 GMT Webinar 3: Preterm Birth History Matters – To Both of Us: How to Foster Communication Between Clinicians and Patients Live: 11 November 2024 16:00 GMT Webinar 4: Introducing the BPD Collaborative & Insights into Preterm Lung Health in Later Life Live: 18 November 2024 19:00 GMT Webinar 5: The PERIScope Project – An Insight Into What Matters for Adults Born Preterm Live: 27 November 2024 10:00 GMT REGISTER HERE >>> https://zoom.us/webinar/register/WN_jeMZkF-5Tj2CucyEQOgmeA <<< Speakers: Lauren Ingledow holds a BSc (Hons) in Applied Animal Studies and has worked as a qualified Canine Hydrotherapist. Born at 26 weeks due to pre-eclampsia, Lauren co-founded the Adult Preemie Advocacy Network in 2021 to raise awareness and provide peer support for adults born prematurely. Juliette Lee is a qualified paediatric nurse with a BSc (Hons) in Child Nursing. Born at 28 weeks due to Twin-to-Twin Transfusion Syndrome, Juliette co-founded the Adult Preemie Advocacy Network to advocate for greater understanding of the lifelong effects of premature birth. Mandy C. Daly is the founder of the Irish Neonatal Health Alliance and a mentor to PhD students, specializing in advocacy, education, and neonatal health research. She contributes to advisory boards, guideline development, and over 70 research studies, shaping European Standards of Care for Newborn Health. Michelle M. Kelly is an Associate Professor at Villanova University and a pediatric nurse practitioner, focusing on neurodevelopmental outcomes and lifelong health risks of those born preterm. She publishes and presents internationally on preterm birth outcomes and nurse practitioner leadership. Steve Abman is Professor of Pediatrics and Director of the Pediatric Heart Lung Center at the University of Colorado, with expertise in neonatal lung injury and pulmonary hypertension. He co-founded the BPD Collaborative and recently served as President of the American Pediatric Society. Sharon McGrath-Morrow is a pediatric pulmonologist at the Children’s Hospital of Philadelphia, researching neonatal lung injuries and their long-term effects. Her clinical focus is on developmental lung diseases in preterm infants and the role of environmental factors in respiratory outcomes. Joseph Collaco is a professor of pediatrics at Johns Hopkins University, studying the epidemiology of pediatric respiratory diseases like cystic fibrosis and bronchopulmonary dysplasia. His research emphasizes the impact of environmental factors such as secondhand smoke and e-cigarette emissions. Rachel Collum is a strong advocate for Family-Integrated Care in neonatal units, working to support families of preterm infants in the UK. She chairs the Northern Neonatal Network Parent Advisory Group and leads advocacy efforts with BAPM, focusing on the lifelong effects of prematurity.