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Community

Featured Entries

CEPAS

99NICU Becomes a Partner of the CEPAS Conference 28-31 Oct 2026

We are pleased to announce that the 99NICU Community has become an official partner of the CEPAS Conference, 28-31 Oct 2026. CEPAS is an international conference dedicated to advancing knowledge and collaboration in neonatal and pediatric care, a new biennial meeting of the European Academy of Paediatrics (EAP) and the European Society for Paediatric Research (ESPR). In addition, the Global Foundation for the Care of Newborn Infants (GFCNI) is co-organiser. Through this partnership, 99NICU will
Preterm birth

Quality of life in adults born extremely preterm - and large gap between what we know and what we need to know

Sweden is a good country to be born extremely preterm. Neonatal intensive care is centralized and pretty much equally organized, and outcomes are regarded as good and similar throughout the country. Like in most other European countries, the welfare system enables equal access for all, practically at no cost for families. Sweden has been at the forefront of the slide of the ”window of viability”, i.e. at which gestational age extremely preterm infants are offered intensive care. I don’t know how
nutrition

NICU Nutrition - can a sub 1000g baby grow on breastmilk alone?

This is my first post. I may be slow to keep posting here as I also focus on the Butterfly Project and work with parents. But, please stick with me, and help me share what you know, and your insights on NICU nutrition, to the Global Majority. I want to share content for all things NICU nutrition related especially with a view for global collaboration. I want YOU to help me make a difference to the sick newborns in LMICs. I want to learn how best to translate knowledge to, and share good practi
99nicu

🎉 20 Years of 99nicu 🎉

On May 11, 2026, 99nicu turns 20. It’s a moment that feels deeply meaningful to me. When I shared the very first words on 99nicu back in 2006, and celibrated our first birth day in 2007, the idea was simple: to create a web-based space where NICU staff could “share and care.” This was before social media as we know it today, when like-minded people gathered on bulletin boards in the era of what we then called Web 2.0 (Wikipedia), guided by the belief that “information wants to be free.” (Those r
news

CEPAS 2026 programme is now online- which got us thinking: how do YOU do conferences?

The interactive scientific programme for CEPAS 2026 is now online, and if you haven't explored it yet — check out https://www.cepas.org/scientific-programme. Built on more than 15 years of collaboration between the European Academy of Paediatrics, the European Society for Paediatric Research, and GFCNI, the CEPAS programme brings together science, clinical practice, advocacy and paediatric training in one place. Sessions, topics, networking opportunities — it's all there, and it's a lot. Which b
CEPAS

99NICU Becomes a Partner of the CEPAS Conference 28-31 Oct 2026

We are pleased to announce that the 99NICU Community has become an official partner of the CEPAS Conference, 28-31 Oct 2026. CEPAS is an international conference dedicated to advancing knowledge and collaboration in neonatal and pediatric care, a new biennial meeting of the European Academy of Paediatrics (EAP) and the European Society for Paediatric Research (ESPR). In addition, the Global Foundation for the Care of Newborn Infants (GFCNI) is co-organiser. Through this partnership, 99NICU will
upgrade

New Translation Features: Neonatal care has no borders, and neither should our 99nicu community

Dear 99nicu friends, Some of you might have already noticed our 99nicu page has been going through small improvements. We keep thinking about how to make this page more friendly for you, our users. What would it take to make us a page you visit often, or maybe even your starting page? Last week I implemented an RSS feed with the newest papers in neonatal medicine. As 99nicu, we cannot guarantee you access to full texts, but at least we can show you new research being published every single day—f
Wrap

99NICU - the online neonatal community reclaimed

We are approaching the 20 year anniversary of 99NICU and while thinking about our journey, we also came to explore the wider scope, including the feeling of a lost online neonatal community. When I first helped build 99NICU in 2006, it came from a very simple need: a safe place to talk about neonatal care with other health care professionals. Not just to exchange information, like over email, but create a community space to think, question and learn together from real clinical experience. At the
World Prematurity Day

World Prematurity Day 2025

today, on November 17, is World Prematurity Day. We, being neonatal health care professionals, are much aware of the many unmet needs for preterm newborns. But, for the larger context, there is still much to do, creating awareness of the large public health challenge to reduce the burden of preterm birth. If you have some time today, join the WHO webinar about the launch of a new global clinical practice guide for Kangaroo Mother Care (KMC). Register here!
Social media

the NICUVERSE - the solution to collapsed neonatal social media feeds?

I spent a few wonderful days at jENS 2025. While I had great days at this large neonatology conference, I also checked in into the various social media channels, to find out about missed out things. And realised… the neonatal social media is pretty dead ☹️ In the beginning, we had a pretty basic Internet. It offered the opportunity to search for information unilaterally and connecting people over electronic mail. Later came the embryo of the social web, taking the communication beyond emails. Th
Events

Our Colleague Vicky Payne Recognized by the Neonatal Nurses Association in the UK

We are beyond thrilled to congratulate our colleague @Vicky Payne on receiving the Outstanding Contribution to Neonatal Nursing Award 2025 from the Neonatal Nurses Association in the UK. Vicky is outstanding in every sense of the word—not only exceptional, but truly standing out from conventional boundaries. Operating at the edges of traditional nursing roles, never quite fitting into a single box, and that's precisely what makes her extraordinary. Her willingness to be an outlier—to stand outsi
Work Life Balance

Last night shift

I’ve done it, the last night shift. What in many ways defines us, devoted to neonatal care, is no longer part of my working life. One of my gifts in life has been endurance and grit, allowing a good amount of workload. It has enabled my long journey from the countryside where I grew up to an intellectually affluent position with many hats: one clinical, one academic, one for greater-good projects (like 99nicu!), and one as a startup entrepreneur. But with time and age usually come limitations, e
Interview

Watch Preemie voices | Listen to Neonatology Now

we wanted to promote two neonatology media projects. First of all, the Preemie voices videos, meeting some of the preemie participants who wrote the inspiring letters in “Preemie Voices” book by Dr Saroj Saigal. Both videos, from 2014 and 2024, are added to the Links Directory but also embedded directly below. Our second recommendation is to follow Neonatology Now, a podcast hosted by European School of Neonatology. The most recent episode is a very interesting interview with Prof Barbara Schmid
Events

World Breastfeeding Week: A Special Preemie Chat on Human Milk in the NICU

World Breastfeeding Week is approaching, and we'd like to invite you to join this live event organized by the Canadian Premature Babies Foundation, in collaboration with the Canadian Association of Neonatal Nurses and FiCare. Join on August 1 at 1 PM ET for a special Preemie Chat featuring expert talks from Dr. Marianna Gonzalez @Mariana Oliveira , presenting the Brazilian POP-MOM protocol for early oral exposure to mother’s milk; Dr. Erin Hamilton Spence, who will explore the clinical and emoti
Advocacy

#BabiesNeedScience - join this campaign kicked off by AAP

The American Academy of Pediatrics, AAP calls NICU staff, researchers, families and all others policy makers, kicking off the #BabiesNeedScience campaign on April 25! While the initiative seems to originate in the current US context, we all know that science is essential for improving public health of infants world wide. As an organisation connecting health care professionals in a global network, we share the values behind this campaign. It may seem like an obvious position that science is instr
Interview

Building Bridges Between Parents and Neonatal Care Professionals: An Interview with Sari Ahlqvist-Björkroth

Building Bridges Between Parents and Neonatal Care Professionals: An Interview with Sari Ahlqvist-Björkroth The Close Collaboration with Parents training program has been transforming neonatal care across multiple countries. As the program prepares for its first international conference in Lithuania, we spoke with Sari Ahlqvist-Björkroth, one of the program's creators, about its origins, evolution, and future. What inspired the creation of the Close Collaboration with Parents program? "Three thi
Wrap

Launching into 2025: Community First

As we step into 2025, many of you have already noticed the major updates rolling out across our 99nicu forum. These improvements are designed to enhance usability and foster connections within our community. While we continue refining the platform, we also want to take a moment to appreciate the incredible projects of 2024. That’s why we’re revisiting this wrap-up—to celebrate the progress we’ve made together and set the stage for another impactful year ahead. 2024: It's a Wrap! The Future of Ne
Upgrade

Major update of the 99nicu web site

Exciting times are ahead of us! We are approaching the Big Leap upgrading to our community software to a new version. This is a major upgrade, but we hope there won't be too much issues while doing it. In addition to lots of tech stuff, the look and feel will also change, especially on your mobile  😀 In case the site drops offline 🫣 we will share updates on Mastodon, BlueSky, and LinkedIn. We are yet to finalize the timeline for doing this. You will know it when you see it!
neonatal hematology

PDA: meds/surgery/conservative

Hi there seem to be enough evidence about the lack of beneficial effect of treatment of the PDA! The approach to a hemodinámica significant ductus has changed significantly in the last 10 years.  Years ago we weee so obsessed that indocin prophylaxis was standard in many NICUs and early treatment became standard across the board.  I remember going to Dr Clayman  PDA lecture at PAS where the PDA was seen as a demon many babies had  been exposed to surgical ligation with a known
Biotech Innovation

Hope x to Neonatal Congenital Heart

Had a chance to attend #TEIBIO -  Transference (of knowledge Entrepreneurship ) & Innovation in Biotech . inspirational talk on rare diseases awareness day and topics were bringing hope to paediatrics #nicu: by address solutions to Neonatal Congenital Heart #CHD ❤️and better tolerance heart transplant. - 💡Crazy scienceco-founder Dr. Beatriz Salvador shows us how her team have found a non-invasive treatment for Congenital Diaphragmatic Hernia.  They were able the hole in C
99nicu - tech

The software platform for 99nicu.org takes a new leap

The 99nicu.org web site is built on the Invision Power Board software.  In the next version (v5) there will be a major overhaul of the user interface, allowing for an even better way of presenting and browsing content here. You can get a sneak preview in the video below (a bit techy, but still )  
Social media

Values made me X-it

I don’t need to expand on how Internet and social media have shifted the paradigm for professional discussion. You know this! Painful it is, but I wanted to share that I have decided to close my Twitter/X account. I will miss you tweeps. But... see you soon elsewhere! I started to build a network on Twitter in 2009, exploring this new channel for communication about research and medicine. Twitter was different then, compared to what X has become. In the earlier years, Twitter impersona
Guests

From Tarrega's Memories of the Alhambra to Sibelius' Tounela Swan: experience of a Spanish neonatologist in Turku

I would like to introduce to you doctor Angela Gregoraci, a Spanish neonatologist, who has just completed a two-month observership in our NICU in Turku, Finland. Our unit here in Turku, is a tertiary center, with single-family rooms and- even more importantly- with families having the possibility to stay with and care for their sick or premature infant throughout the day and night. The objective of this short training was to learn how to facilitate the implementation of family-centered care in d
Seneo Transport pics

Humanize Care Neonatal Transport in Spain.

Fantastic put together webinar by neonatal transport Seneo work neonatal transport group. Here are some  favorite suggestions. 🔷Ear Muffs 🔷Air mattress 🔷Blanky with mum swell  🔷Fuzzy toy. 🔷Thank the Drivers : Be aware of G force driver have take with sudden break.  🔹Consider 🚑 design allow all to have a better transport experience.             From my perspective it was   Interesting the neonatal transport   Landscape is diverse from the pioneering r

Humanizing Care NICU : Management with Compassion

Today I sharing ‘tis post from HUGES a great. Organization dedicated to humanizing care in intensive care settings and emergency services. I particularly by this webinar on humanize. Management starting with leading with empathy, simply things that can be hard to achieve, but make us think Speakers suggests a few things to start with :   J. Carlos March - Profesor  EASP {Escuela Salud Publica- Public Health Institute of Andalucia}  Director of School of patient.
startup

Why health care professionals are fitted for the #startup universe

I like projects outside my clinical and academic work. 99nicu was the first big project that came out in public from my "Department of Brilliant Ideas". Since several years, I have devoted a lot of work for a project that eventually led to the startup Neobiomics, since 2019 under the wings of the Karolinska Innovations AB. Neobiomics provides ProPrems®, a high-quality multi-strain food supplement. Entering the startup universe has been like embarking a rollercoaster journey. In many wa

the 99nicu App - to be expected during 2020

The professional communication during the Covid-19 pandemic really shows the potential to share expertise and experience through web-based channels. Journals, societies, regular news media, social media platforms etc-etc play an important role for us to keep updated, and many web sites have also opened up their content free of charge. We will learn many things from facing and tackling this pandemic, but one major change will certainly be our communication channels. Many are discovering

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